Building awareness for this disease is important. Here is an article by a fellow “zebra” living in the UK that is well-worth the read.
It goes without saying that the sooner any cancer can be correctly diagnosed, the better chances of a complete cure for the person concerned. However, some cancers are easier to diagnose than others. One of the key issues associated with the correct diagnosis of Neuroendocrine (NET) Cancer is the vague symptoms which may be mistaken for other diseases and routine illnesses. Moreover, this may go on for many years. The most common misdiagnosis appears to be irritable bowel syndrome (IBS), asthma, or menopause. Patients complain of abdominal pain, wheezing, shortness of breath, diarrhoea, flushing, palpitations and a whole host of other minor issues. There are even extreme cases where patients have been told they may have a mental illness following constant visits to their local doctors.
Some respected medical sites quote an average 5 to 7 years of delays from initial onset of symptoms, with around half of patients diagnosed at an advanced stage of disease and metastases at…
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